ON THE BACK, OWN FLAT SURFACE, IN THE PARENTS' ROOM, NOTHING ELSE IN IT
Sudden Infant Death Syndrome - StatPearls (NCBI Bookshelf NBK560807) - https://www.ncbi.nlm.nih.gov/books/NBK560807/
This is a prevention card, not a treatment card - by the time SIDS is the diagnosis nothing can be done. The whole intervention is a conversation at every baby check, and the survey figures in the article show it is the details after "on the back" that get lost.
- THE CORE INSTRUCTION - the AAP asks that every infant sleep on the back, every time, on a surface that is firm, flat and not tilted; in the room where the carer sleeps, but on its own separate sleep surface, ideally for the first 6 months at least. Sharing a room without sharing a bed cuts the risk of SIDS, of suffocation, of strangulation and of entrapment by as much as 50%.
- EMPTY THE COT - nothing soft in the sleep space: no pillows, no blankets, no comforters, no mattress topper, no plush fabric, no soft toys, no loose bedding. And do NOT raise the head of the cot or use a tilted sleep surface - it does not stop reflux, and it can make the airway less safe. Propping the mattress up for reflux is a common piece of advice and it is the wrong one.
- WHAT TO SAY WHEN THE BABY STARTS ROLLING - once an infant can roll both ways on its own, from back to front and back again, it can be left in the position it takes up. Even so, the evidence is for starting every sleep on the back until the age of 1.
- SWADDLING HAS A STOP DATE - a swaddle is safe only with the baby on its back and with room enough at the hips and the knees, and it has to STOP as soon as the baby starts trying to roll, which is typically at 3-4 months. A swaddled baby who rolls onto its face cannot get off it.
- BREASTFEEDING PROTECTS, AND ANY AMOUNT COUNTS - breast milk lowers the SIDS risk whether it comes from the breast or expressed, and the protection is greatest when it is exclusive and goes on longer. Any breast milk at all gives some protection. Where a mother is not breastfeeding, discuss feeding respectfully and without judgment, and go through every other safe-sleep point with her just the same.
- TWO EASY WINS THAT OFTEN GET FORGOTTEN - keeping the routine immunisations up to date goes with a lower SIDS risk. So does a dummy at naps and at bedtime, and it still counts even if the dummy falls out once the baby is asleep. Two caveats: a baby who refuses a dummy must NOT be made to take one, and the dummy waits until breastfeeding is firmly established.
- SMOKE IS THE BIG MODIFIABLE RISK, AND BED-SHARING MULTIPLIES IT - keeping the baby away from smoke, nicotine, alcohol, cannabis, opioids and illicit drugs matters critically, in pregnancy and after the birth alike. Sharing a bed with a smoker is especially dangerous: the SIDS risk is particularly high where the baby shares a bed with an adult who smokes, and that holds even where the adult never smokes in the bed itself. Electronic cigarettes carry nicotine too, and may raise the risk in the same way. In a household where the father smokes, this is the sentence to spend time on.
- DO NOT SELL THEM A MONITOR - a home cardiorespiratory monitor has never been shown to prevent SIDS, and it may lull a carer into complacency, so it is NOT recommended for routine use.
- SAY IT MORE THAN ONCE, BECAUSE THE DETAILS ARE WHAT GET LOST - a 2019 US survey found 93% of parents had been told to put the baby down on its back, and yet only 78% said they were doing it. The other messages landed less often still: keeping soft objects away from the bed was recalled by 85%, using a safe sleep surface by 84%, and room-sharing without bed-sharing by 50%. Half the parents never heard the room-share-but-do-not-bed-share message at all.
- WHO NEEDS THE CONVERSATION MOST - a family whose baby starts at higher risk - born preterm, or with a sibling who died of SIDS - deserves particularly careful counselling. And it starts before the birth: safe sleep should be promoted consistently by everyone around the family, in pregnancy and then at every well-child visit through the first year.
- WHAT SIDS IS, AND WHAT IT IS NOT - the 1969 definition: an infant under 1 year dies suddenly and unexpectedly, and the death stays unexplained after a thorough investigation - the medical history reviewed, the scene of the death examined, and a complete autopsy done. By that definition no single cause of the death can be found. The wider term, SUID, takes in every sudden unexpected infant death: those later put down to SIDS, those from accidental suffocation or asphyxia, and those where the cause or the circumstances stay uncertain.
- IF IT HAS ALREADY HAPPENED - SIDS is a diagnosis made after death, so there is no medical treatment and no acute management for the infant. What management there is, is supportive and aimed at the family: compassion from everyone on the team, reassurance, and a clear explanation of what SIDS is and of the investigation that follows. Bereavement counselling may help the family. And where an inherited condition comes to light, referral for genetic counselling is appropriate.